At the time of the last entry Nicole was extremely tired and not eating. She continued to spiral into the weekend and reached a bottom on Saturday, May 14th. (May 14th just happens to be my birthday for those of you who wish to send me a belated birthday gift/wish J.) She was pale, extremely tired, and unable / unwilling to eat or drink anything. She had reached the point where she was gripped with fear with the thought of eating or drinking. Specifically, she was afraid of the pain associated with swallowing. This fear led to inaction and her inaction was making her extremely sick. So how do you get a kid to eat or drink when they are gripped with fear after you have tried everything? Well, Saturday afternoon I walked into her room to find her lying on the floor covered with a blanket. She was very sick, it was obvious. I lay down next to her and began to talk in my most soothing daddy voice. (You dad’s know what I am talking about.) I decided that the approach I would use, though not my first or favorite, would be to conquer her fear with fear. I informed her, in that soothing daddy voice, that if she did not eat or drink that she was going to have to go back to the hospital. This was not a lie. She sat up. I repeated myself once again in a little bit more serious voice only with the small addition that she would most likely have to get another “pokey”. She stood up and began walking downstairs. I gave her a glass of ice-water and asked her to drink every drop. She did. I made some chicken noodle soup, puréed it into broth, and spoon fed it to her all the way to the bottom of the bowl. This continued all the way through the remainder of the weekend and on into Monday. The fear approach, though not my desire, worked. I felt like I was mentally manipulating Nicole. However, sometimes desperate times call for desperate measures. The important thing was the nutrition she was receiving. Mid-week, and Nicole was nearly back to normal eating and drinking everything in sight.
Since the above, Nicole has improved drastically. She is already eating better than I have ever seen her. She talks more, her speech is drastically improved, and her hearing is definitely improved thanks to the better sinus drainage. She just had a doctor’s appointment today and she does not even need hearing aids! Praise God. She still has some hearing loss, but not enough to justify the hearing aids at the present time. Her nephrologist also stated that she is doing wonderful. All of her blood work is fantastic and she is at full strength. We can once again carry on with the tissue matching. We will go in Wednesday of next week, perform blood work, and then if the results are still OK then we will perform tissue matching with the next two potential donors. The next two to be tested are Tiffany Smith, Titia’s niece, and Krista Ruska, a potential donor from
So as of right now, it is all good news!
No ear tags and scars on her ears / neck from the removal of her branchial cyst and ear pits. Isn’t she cute!
Though the process of going through tissue matching, kidney transplants, and other smaller surgeries is absolutely no fun and a great test of faith, things could always be worse. This past month I was introduced to a wonderful family of faith from
I believe there are sometimes in our life that it is necessary to stop, reflect, and be thankful for our situation, regardless of what that situation is. We may believe that it is bad, but remember, things could always be worse. There are some peoples moccasins that I would not want to walk in for a mile. Mine are just fine Lord. Thank you Lord for giving our family the opportunity to bring glory to your name through Nicole’s kidney transplant!
1 Thessalonians 5:1818 give thanks in all circumstances; for this is God’s will for you in Christ Jesus.
For His Glory,